FA Community

Patients featured are paid spokespersons for Biogen.

If you or a loved one has been diagnosed with Friedreich ataxia (FA), you should know: You’re not alone

There’s a whole community of people with FA out there ready to share their experiences and offer advice on how to navigate this disease.

Reach out to others with FA

National groups offer comprehensive support, education, and research initiatives across all ataxias, with helpful educational content through podcasts, books, and other media that reflect real experiences with FA.

FARA is an organization dedicated to the pursuit of research to find treatments and a cure for FA.

Visit FARA

NAF is an organization specializing in improving the lives of people with ataxia, including FA, through support, education, and research.

Visit NAF

NORD is dedicated to helping both people with rare diseases and caregivers of those with rare diseases by driving advances in care, research, and policy.

Visit NORD