Managing symptoms
The progression of FA causes physical impairment, and planning for these changes can help you stay ahead of your FA. Talk with your doctor about which options may be best for you.
Assistive devices
Having the right mobility aid can help you maintain your independence.
Braces can help bolster your arms, legs, and feet.
Using a cane, walker, or wheelchair may be necessary to help you navigate your environment.
Connecting with a specialist
Specialists can help you manage changes in your life as symptoms worsen.
For example, an occupational therapist can help support you in participating in activities that are important to you.
Physical therapists and speech therapists are other examples of specialists who can help you work toward maintaining your independence.
Surgery
As FA progresses, it may be necessary to undergo surgery to correct skeletal problems.
For instance, as many as half of patients with early-onset FA may need surgery to help correct scoliosis.
Discussing surgical options with an orthopedic surgeon can prepare you to make decisions when the time comes.
Healthy living
Plan to include regular exercise in your schedule and talk with your doctor about what exercise regimen is right for you.
Ensure that you’re getting the recommended amount of sleep as often as possible.
Find outlets for stress that work for you, whether they are creative outlets or physical activities.
