Living With FA

Patients featured are paid spokespersons for Biogen.

Just because there’s currently no cure for Friedreich
ataxia (FA) doesn’t mean there’s nothing you can do

The best way to start taking control of your FA journey is to have a conversation with your doctor. Here are some topics you may want to bring up during your discussion: 

Participating in clinical trials

Limited treatment options are available for FA. But there are new drugs in development and clinical trials that are ongoing.  

Your doctor can help you find more information about which trials are open and which ones may be appropriate for you.  

The National Institutes of Health also keeps a running list of open clinical trials for FA. You can find more information by visiting ClinicalTrials.gov and searching for “Friedreich ataxia.”

Learn more about clinical trials
for FA at ClinicalTrials.gov

Natural history studies

There are also studies called “natural history” studies that are designed specifically to track the natural course of different rare diseases. 

The Friedreich Ataxia Global Clinical Consortium UNIFIED Natural History Study (UNIFAI) is a global research study designed to better understand FA and help inform clinical trials for new treatments. 

Talk with your doctor about how you can participate in natural history studies of FA.

A confident woman with Friedreich ataxia standing with her assistive mobility equipment.
A confident woman with Friedreich ataxia standing with her assistive mobility equipment.
A confident woman with Friedreich ataxia standing with her assistive mobility equipment.